Parent Project MD 6.62.0

Mobile Roadie – Freeware – iOS
av 4 röster

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End Duchenne.
Parent Project Muscular Dystrophy (PPMD), an organization at the forefront of the battle against Duchenne muscular dystrophy, has developed a comprehensive mobile application designed to provide crucial resources for families affected by this condition. This application ensures that research updates, advocacy notifications, and essential emergency care information are readily accessible, recognizing the importance of timely information in urgent situations.

The application offers a variety of features:
<ul>
 <li>Emergency Care Information: Access to basic guidelines for managing emergencies when your child requires care from medical professionals unfamiliar with Duchenne.</li>
 <li>Research Updates: Stay informed about the latest developments in research, including upcoming clinical trials that may offer potential benefits for your child.</li>
 <li>Advocacy Alerts: Receive notifications to amplify your voice and that of your child in legislative matters.</li>
 <li>Care Considerations: A resource for optimizing your child's care, including strategies for assembling a multidisciplinary team of healthcare professionals.</li>
 <li>Educational Tools: Resources such as "Education Matters" to facilitate discussions with your child's educators regarding Duchenne muscular dystrophy.</li>
 <li>Community Connection: Engage with the supportive Duchenne community through PPMD's online platforms and parent-led initiatives.</li>
 <li>Event Calendar: Information about PPMD events nationwide, including the Annual Connect Conference, Advocacy Conference, and local fundraising activities.</li>
</ul>

This app aims to provide peace of mind, ensuring that critical information regarding your child's condition is always just a button press away.

For further details about Parent Project Muscular Dystrophy, Duchenne muscular dystrophy, or the mobile app, please visit ParentProjectMD.org or contact 800.714.5437.

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